I spoke too soon!
We weren't able to manage everything with every other day appointments and Lauren was admitted to the hospital yesterday. The main concerns are getting her to gain weight and to keep her breathing at a more normal rate (in the 60's rather than the 120's). Right now she's getting IV Lasix and she's getting aldactone via NG tube. We might start digoxin soon, which will hopefully help her heart a little bit since it has an increased workload.
She's taking all of her feeds through her tube for now until we can get her some more energy. We will be going home with the NG tube though and most of her feeds will be through that. Once we're home we can start out her feeds by bottle and tube everything she doesn't finish in 15-20 minutes.
Thanks again for the prayers and kind thoughts, I'll keep you updated! It's looking like we'll be here until Friday at least.