Welcome to my blog!

A blog about our busy family with two amazing kids, one of whom happens to have Down syndrome!

Sunday, September 17, 2017

The magic of kindergarten

Lauren is officially a kindergartener. School started about 2 weeks ago. She is LOVING it! And Greg and I both feel like she's made huge gains since starting. She can count to 10 flawlessly, her ABC's are getting so much better, she can draw a person with a face, she can trace "Lauren" really well independently. And her speech is getting better by the day.

I really love her teacher, I get pictures and updates every day.

Look at this genius!

We'd always just worked on tracing "Lo", it didn't even occur to me that she'd be capable of this yet. And that person?!

Life is going well on the Tenex as well. She's still Lauren (and thus very mischievous), but her meltdowns are far and few between and she's less aggressive with me. We started with 1/4 tablet twice a day and it went well for the first week. Then she was lashing out (hitting, pinching, screaming at me). So we increased her to 1/2 tablet in the morning and 1/4 tablet after school. Her teacher hasn't noticed any tiredness at school and we haven't at home either. Ryan had a soccer game Saturday morning and Greg was sleeping after working all night. So I was on my own with both kids at soccer. Normally, my anxiety would be through the roof for this and I'd need to recruit help. (Partly because of my anxiety and largely due to Lauren's behavior). She was great! She never ran from me, she didn't have any meltdowns even when we had to do a last minute field change before the game started. She didn't argue about sitting in her adaptive stroller. She had to go potty, and she told me she had to go, then actually made it to the port-a-potty (ew). She talked nonstop through the game and wanted me to pay attention to her, but she's also developmentally overall more like a 3 year old so not unexpected. She was seriously angelic compared to how she would've been a month ago. I really do feel like this medication has allowed Lauren's personality to shine through instead of her behavior taking over her.

Ryan is doing great at his new school! We had his open house, got to meet his teacher, and saw his classroom. I had a chance to talk with his teacher about his sensory/feeding issues. I really debated even telling her because he's come so far, but I want to give him the best chance possible to succeed and I wanted his teacher to be on his side. She seems really nice! They have wobble seats in the classroom, which is great because he struggles a lot with staying still. He wears a bracelet he's obsessed with and he constantly opens/closes the clasp, I don't know if it's a fidget-spinner kind of thing for him or if it's anxiety, I could see it either way for him. I think maybe the wobble seat might help him a little if it's sensory. I also really am hoping we can work our way up to buying lunch on pizza day once this year, but so far Ryan is not on board with this. It sounds like he got picked on a little bit about his Titanic obsession because he told us he's trying not to talk about it so much because the other kids at school don't want to hear about it. I'm hoping it was a friend who kindly told him that he'd rather talk about something else. Either way, Ryan wasn't upset at all, so even if it was in a teasing way he didn't get his feelings hurt. I told him that he can always talk to me and his dad about the Titanic as much as he wants (I may regret this). He apparently found a girl on his bus who also loves the Titanic!

The school year is well underway and going well!

Sunday, September 3, 2017

Behavior win! And Ryan is amazing.

Yesterday was one of those great family days that feels like everything goes right. Don't you just love those day?!

We woke up, I took Lauren to McDonalds' drive-thru to get her a sausage burrito and Ryan pancakes. We brought Monte along because he loves car rides.

Then we all got ready (and Greg woke up since he worked the night before) and drove an hour away to a museum with a Titanic exhibit. It was AWESOME! Ryan is really obsessed with into the Titanic currently. Monte hadn't worked in a while, so it was great for him to get the physical AND mental exercise. (Our nanny said she can always tell when Monte hasn't worked in a while because he's crazier than usual) Then we went to a restaurant that magically had an arcade attached (we weren't familiar with the area and had no clue). Then we stopped at my parents house. It was awesome!

The best part? We had this whole long day full of driving, walking (minimal walking on Lauren's part, I'll get to that), sensory overload (namely the arcade), etc. And only one meltdown! Let me say that again. ONLY ONE MELTDOWN!!!! It was at the arcade and it wasn't super involved. And it only lasted maybe 2 minutes. I think she tripped and fell or something, because I found her huddled in the pedal part of a car-racing game crying. I had to drag her out of there, but she calmed down pretty quickly. We just returned to our table, hugged, she petted Monte. That's it, meltdown over. What?!

She was a little whiny at the Titanic exhibit but loved the rest of the museum. The Titanic part was all real artifacts in display cases. You couldn't even touch the cases without alarms sounding. Mix that with a very impulsive five year old. Yep, we made Lauren sit in her wheelchair the majority of the time. She convinced me she wanted to get out a couple of times (clearly I am insane because each time I expected it to go differently). She was really good though! Minimal complaining. There was a huge "iceberg" actually made of us that the kids got to touch. Monte was thrilled to be with Lauren. He's trained to walk ahead of me by a couple feet so he can be directly next to Lauren in her chair. At one point he just leaned over and rested his huge head in her lap. It was really sweet. Ryan absolutely loved the whole thing. And after the Titanic exhibit there was a kids play area with an ambulance the kids could "drive". Then there was an autoworker exhibit.

It was such an awesome day. I'm not sure if it is maybe our behavior medicine kicking in, or the fact that we had Monte with us, or a combination of both. But the stars aligned yesterday and it was amazing. Our whole lives generally revolve around Lauren's behavior, so it was really awesome to have such a great day. The day before my twin sister and I attempted Costco with Lauren...sans Monte because I couldn't find his pack. If you happened to be at our Costco and saw two adult women attempting to wrangle an angry and very flexible five year old into a ridiculously tall shopping cart, it wasn't us. Nope, no sirree. Not us.


As a side note, anyone that knows our Ryan in real life knows he is seriously such a great kid. He's also a little quirky and speaks like an adult. It's been my favorite thing about him since he was two years old and started talking. It used to be scripting from Thomas the Train, and hearing a little kid use correct train terminology was hilarious. Here's a few snippets from our museum visit yesterday:

-Oh, so they excluded the other half (of the 3D model of the ship, so you could see the inside)
-I'm concerned it's not safe. Have you checked the data? (He initially thought we were getting on an actual ship made to be a replica of the Titanic)
-I am not getting in a submarine. I don't have enough bravery.
-I think it took a million blueprints to build the Titanic