Welcome to my blog!

A blog about our busy family with two amazing kids, one of whom happens to have Down syndrome!

Monday, January 15, 2018

Fingers crossed, knock on wood, things are good.

I should not be posting this, because the jinx is alive and well at my house....but Lauren has been SO GOOD for me lately. We've still had our normal issues with being extremely stubborn and not listening super well. But she's been so sweet. And a lot less impulsive. She'll wander away from me at Target or pretend she can't hear me if she wants to walk somewhere else, but she hasn't been darting off (knock on wood). This is major! It's still really challenging for me to take her places alone like a grocery store, because generally speaking she can't (either physically or behaviorally) walk through the whole store. And she's over 50lb of solid low muscle tone, so lifting her up high enough to fit into a grocery cart seat is getting impossible. I'm short, so I have to lift her over my head to get her in the seat. This does not work! The times where Lauren will help me out a little, she'll swing her legs up and into the seat part. The times she won't, I look like some kind of crazy person trying to wrestle her into the seat. Our Target does have a Caroline's Cart, which is immensely helpful, but for some reason the wheels are super loud and she covers her ears. Our Kroger does not have one (yet) so grocery shopping is really tough. It's sad, because her love of Kroger rivals how most kids feel about Disney World! When I go without her I have to hide all evidence or lie and tell her I went somewhere else.

The kids have both tried roller skating! Lauren did it for literally 5 seconds and I realized that at this point in time, her legs just cannot do it. With her foot issue especially, I think we should master walking first! Ryan has done it twice (once for a birthday party yesterday) and is getting more confident! I'm going to ask our local roller rink if they'd allow me to bring Lauren's wheelchair on the rink. I know she would absolutely love to have the experience of roller skating!

Ryan's been struggling kind of a lot, which makes me sad. I don't post a lot about him because he wants his privacy protected, but we could use some prayers regarding his anxiety. It hurts my mama heart that I can't make this better for him.

The kids had today off of school for MLK day. It's been great because this is the first year that Ryan seems to really understand who Martin Luther King Jr. was and he seems eager to learn about what he accomplished for civil rights of our fellow Americans. My parents watched the kids today since Greg and I both had to work and Ryan asked my dad to take him to the Henry Ford Museum. They had so much fun!

I booked my hotel and retreat registration for the Down Syndrome Diagnosis Network Rockin' Mom's Retreat! It's a weekend retreat for moms of kids with Down syndrome. And it's in Phoenix, AZ! I met a bunch of moms online through a Down syndrome forum and in Facebook groups. I am so beyond excited to feed my soul and meet some awesome moms. It's really outside of my comfort zone to go to something like this (even flying alone is a big deal for me!) but I am really excited.

Sunday, January 7, 2018

Today was a BIG DAY for both of our kids.

Ryan got up this morning, got dressed for church (in a button up shirt, no less). Then when it was time to leave, he put his shoes on, got in the car, and we went to church. This sounds normal, right? This has NEVER happened before. Ryan has a lot of anxiety surrounding leaving the house. Even to go places he likes (like church), it's not easy for him. Greg works most every Sunday, so it's generally just me, as it was today. I am so incredibly proud of him. I even let him get an Oreo McFlurry after church to celebrate!

And Lauren read us a book today. Seriously. Read. Us. A. Book. I just happened to look in her backpack for the first time over Christmas break (school starts tomorrow, don't judge me) and they sent home a book for her to read. The other kids in her class have been getting books sent home, but she wasn't ready yet. So I pulled it out and told Greg, "Lets see if she knows any of these words." Um, she did. She read us the whole dang book. It's pre-reading skills and not decoding, but she had to recognize "I" and "am". Then she had to look at the pictures to give her some clues as to what the verb was. I wish I knew how to post videos on here!

In other amazing news, my husband and I talked and it looks like I'm going to the DSDN Rockin' Mom's Retreat in September!!!!! I am SO EXCITED to meet in person (finally) some friends I met online over 6 years ago when we got Lauren's diagnosis prenatally. I can't wait.