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A blog about our busy family with two amazing kids, one of whom happens to have Down syndrome!

Wednesday, March 8, 2017

Lauren's REED...and new skills!

On Monday we had Lauren's REED (review of existing evaluation data) to discuss what kinds of evaluations will be done in the next month. (They have 30 school days from the REED to complete it and convene for the IEP).

It went really well! The only team member not there was the PT (because she was at a different building) and my husband (because he was at work). It was Lauren's teacher, her OT, speech, the school psychologist, and me. We decided to consent for cognitive testing this year. It's kind of a crapshoot whether they'll even be able to get a full scale IQ because she's only 5, but they will look at scores across the board to see where the data lands. The IEP classifications we're considering are OHI (otherwise health impairment), CI (cognitive impairment) and Speech and Language Impairment. She'll keep her speech classification as a secondary no matter what, but they're not sure if she'll pick up a CI label yet. She's currently OHI, which I'm not sure how long she can keep that in our state, but the team wasn't confident she'd qualify for a CI label yet based on upcoming testing.

The only person at the meeting that hasn't met Lauren yet was the school psychologist. And the rest of the team had such great things to say about her! Her OT said she's a hard worker who doesn't get frustrated easily, her speech teacher said she's a rock star and has a great attention span (when she feels like it). The whole meeting was extremely positive and I really felt like there were no "sides". Everybody there was on Lauren's side. I had the chance to ask questions, which was nice. The only real question I had was that if they were able to try to get a FSIQ (full scale IQ) if they would please attempt verbal and nonverbal. Lauren's a speech rockstar, but is still definitely behind her typical peers, and expressive language can affect scores. The team cautioned me that if Lauren's IQ score appears to be low, that they'll likely assume there were some struggles with cooperation and language. Lauren's doing awesome cognitively, and I'm glad her team realizes that and is already planning to take that into account when reviewing testing scores.

They asked me to review medical history for the psychologist. It makes me so sad to think about Lauren's rocky start, but I'm so thankful for how healthy she is now! Then we reviewed areas that create barriers to learning for Lauren (behavior!!!). We went over some new phrases she says a lot at school and at home, namely "I will do all of it!". She often refuses help even if she needs it, and if she's only supposed to touch one thing (like during receptive language testing) and she wants to touch all of them...well, she's going to touch all of them. She insists on turning every single page of all testing booklets herself. This will likely create a barrier to testing! I totally forgot to mention the issue of elopement/flight risk until Lauren's teacher reminded me. Duh! I explained that she's getting a service dog and reviewed with the team what specific tasks he will be trained for. The team was really excited for her and how he will help foster her independence (like not needing me to hold her/hold her hand and not having to be confined in a stroller for public outings). They asked if we planned on him accompanying her to school (we're not) and seemed open to it, which was pretty great. I figure they get one chance. If they lose her even one time we're asking for a para to handle the dog (he is trained to work in a triad team, meaning Lauren-Monte-Handler (generally a parent)). Can you imagine sending a fluffy dog to a kindergarten class and telling everyone they can't pet him? Me either.

It was a great meeting and her IEP is scheduled for April 24th. I've asked for a copy of all MET data to review prior to the meeting, which isn't what people generally do, but I'm legally allowed to do it. That way I won't be blindsided by results walking into the IEP.

As for new skills... Lauren is AMAZING!!! I'll detail some of the amazing new things she's started doing just this week.

-She wrote her name! We have her just writing "Lo", this is also in her IEP. We have a Boogie Board, which is this awesome tablet type thing that you write on and then push an erase button to make it disappear. She was using her finger and talked herself through it. "Big line, little line. Then a circle. That's me!"

- She sight read fish, dog, goat, and panda.

- She told Greg that Panda starts with P.

Saturday, March 4, 2017

Ryan

Ryan has been noticing a lot lately and becoming a lot more observant! He wanted to know why my blog isn't called Meeting Ryan. I assured him that I write about him too!

He "failed" his vision screening at school a while back, we just got the letter in the mail. So Monday afternoon he has his first visit to the eye doctor! He was mad when I told him because he was afraid people will make fun of him if he wears glasses. Then he told me that everyone at his school wears glasses, so I wonder if maybe he's just nervous in general and wanted to argue about it. I've actually been wondering lately if he was having a hard time seeing things, plus he gets headaches, so I was not at all surprised when the letter came home. If he needs glasses he is going to look so adorable!!!

He is turning into such a man lately. He has a YouTube channel (heavily monitored by mom and dad). He's building Legos like a champ. He's doing great in school. He has a new friend at his table in his class, she's from the VI program (visually impaired). I am so excited about this!! He asked me what VI meant so I explained it meant visually impaired, which just meant she has a hard time seeing. The advocate in me had me wanting to ask him what kind of accommodations she gets, if she has a para, if she goes to resource room, if everyone's being nice to her...but he's 7 and honestly doesn't care what kinds of accommodations she has, lol. His teacher put her at his table because he's such a welcoming boy and used to kids being a little different. Proud mom moment!

My heart is overflowing with love for this boy.