Welcome to my blog!

A blog about our busy family with two amazing kids, one of whom happens to have Down syndrome!

Friday, July 8, 2016

She's learning so much

Lauren has been learning like crazy lately!

I got home from work today and I asked Lauren what she did. I do this every day and sometimes I get an answer. Most often she tells me "uh-uh" or "go away" or my personal favorite, "pee-pee", which are her go-to responses when she's not sure what to say.

Today, however, I got a real response! She told me "Renee house", "Renee dog" and "I pee my pants". I asked her where she peed her pants and she told me "Renee house". She did indeed go to Renee's house and saw Renee's dog! I don't actually think she peed her pants, Ryan said she didn't! She is apparently picking up potty humor and thinks it's completely hilarious to answer questions with inappropriate answers. This week at Kroger a lady asked her what color her shoes were and Lauren responded, "Pee!" Luckily the kind woman thought Lauren was trying to say pink!

On Wednesday for the very first time she asked another child their name without any prompting! She went up and said, "Hi baby! What name?" While signing "name". I was so super excited! Unfortunately the child she chose to talk to was really young and not able to answer, but still! That is a big development!

We have been going on bike rides lately because we bought Lauren a bike seat for my bike. She LOVES it and asks to go all the time. Her favorite thing to do is look for dogs. Today she wanted to look for dogs, cats, and babies. We saw a baby and 2 dogs so I'd call it a win.

I just feel like she's a little sponge lately, she is soaking up everything around her and talking so well. And so much. She says all of our names so clearly. She calls me mom, mama and mommy. She pronounces mommy like mah-nee, with an n. It is SO adorable. She can say daddy now, where she used to say da-ee. She says potty now instead of pa-ee. She will at least try to repeat almost anything. We have this one particular book of animals and she can say so many of them now! Kangaroo, turtle, dolphin, monkey, butterfly, camel, tiger, lion, hippo....and she says them spontaneously when she sees their pictures. She knows the animal sounds for a ton of animals and has a specific roar for the tiger, lion, and bear. She will tell me "bird fly in sky!" while flapping her arms and pointing the sky. On our bike ride today we saw an airplane and she said, "Mama! Airplane in sky! By airplane!"

We got a new playscape for our backyard! We got it used and it is amazing! The kids really love it. We had a party on July 4th and while we had everyone over, we made them work for their dinner! We'd had it in our side yard for a week but it was huge and heavy and we needed as many hands as possible to get it over our fence.



And this guy. He has been so sweet to his sister lately! He's been inviting her to play with him and sharing his toys so well.



Saturday, July 2, 2016

4 years of Lauren

I have fallen off the blogging truck. Its been months since I've written anything which us due to a combination of writers block and smooth sailing.

Lauren is 4 years and 4 months old. I could never picture her being this age! She is so much fun. And so incredibly SASSY. She is 4 going on 14! Let me just enlighten you on some of the funny things she is doing.

-If she doesn't want to do something she's asked to do she says "No ma'am!"
-She has a bike seat attached to my bike and she loves bike rides. She will just go get her helmet and put it on of she wants to go for a bike ride, then come find me and say "Mom! Want bike ride!"
-She loves to brush her teeth
-She loves to throw everything in the toilet. Recently this resulted in major plumming issues that resulted in 2/3 of our toilets having to be completely disconnected and removed.
-We are on our 4th pair of glasses since August. I'm sure you can guess why.
-She loves to sing. And pray. And talk nonstop every single waking moment of ever single day. Its so awesome and we know how blessed we are that she's so verbal!
-She is potty trained!!! This was a rough go at first. She was afraid of pooping in the toilet which resulted in even worse constipation than usual (sorry for the TMI but I know my Ds families feel out pain). Now that she's not scared and taking fiber gummies daily, she is having daily bow movements in the potty! PTL!

Really, life has been mostly good here. Lauren has been running/eloping which is absoluty terrifying. She can slip away in a second and while she seems momentarily afraid when we catch/find her, she truly does not seem to understand danger. She now has a bracelet she wears 24/7 that says "I have special needs" and "Please call if I am lost" along with our phone numbers. We're looking into GPS tracker bracelet systems. We've talked about a service dog but the cost is prohibitive. We double and triple lock our doors. Our outside gate gets locked. Ryan is always on the lookout. I feel bad because I know this causes Ryan a lot if anxiety too and he's only 6 years old. We were watching her at gymnastics this week and he briefly couldn't see her. He lanicmed and said "Oh no, I bet she ran. We need to find her." I explained that the gym was owed in and that she could not get out. This worry has become a way of life for us that is very stressful! She's gotten lost at a museum (briefly, with 2 adults watching her), escaped from our house (I found her 2 blocks over), runs from us at church, almost jumped in a swimming pool, etc. Its so scary. And Ryan kind of gets neglected while we're out because I know he won't go anywhere. We've started bringing her adaptive stroller pretty much everywhere to contain her. She would way rather walk, so this is not a fun option but it is a safe option. We bought a little backpack leash that we haven't used yet.

Mostly, 4 years into this journey I am still surprised at how fun it is. She has such a joyful spirit (which makes discipline so so hard for us!). I'd swear she is made if pure sunshine.

Last night I got home at 9:15 and she was still awake. She was so hyper and had the giggles. She is usually very lively but this was comparable only to a leprechaun on cocaine. My arms were weak with laughter while trying to escort her upstairs for bed for the millionth time. Then we were rocking in her rocking chair and she kept kissing me and then cracking up again! I was trying (and failing) to keep a straight face. All I could think of is that I know I never deserved any of this. And I am so so blessed.