Welcome to my blog!

A blog about our busy family with two amazing kids, one of whom happens to have Down syndrome!

Thursday, December 11, 2014

Non update update

We really don't have a whole lot going on, knock on wood. We are getting ready for Christmas though!! Our tree is up, our house is lits and most of the gifts are bought. We're also really trying to teach Ryan the true meaning of Christmas this year and his adorable five year old (!!!) self is excited to celebrate Jesus' birthday!

Speaking of birthdays... Ryan will be FIVE this month!!! I'm not sure how this happened, I feel like I had him last week! I am so proud of the sweet, wonderful, caring and loving person he is becoming. He is such a blessing. I love his goofy personality, his love for his sister and his little quirks that so much resemble mine.

Sunday, November 30, 2014

Running wild!

Lauren is basically a gross motor genious, if I do say so myself. She is running now! Its so cute and funny because she barely bends her legs and she pumps her arms so hard like they're propelling her. All of this while laughing hysterically. Every time!

She's also a little mama now. She LOVES baby dolls. And real babies, which is terrifying. She wants to hold my 8 week old nephew 24/7 and gets so sad when its somebody else's "turn". She beings him blankets, covers him up, gives him his pacifier. Its so completely adorable but we have to watch her like a hawk! We've caught her more than once trying to pick him up. She's just so full of love!!

She's still loving preschool and obsessed with her big brother. He's been awesome with her too and I'm so glad they're so close in age. He turns 5 in 18 days!!! And lauren will be 3 in just two months.

Time flies when you're having fun and so busy you can't see straight ;)

Tuesday, November 18, 2014

Skipping school

We skipped school today. Ryan woke up at a normal time and played with his toys. I must've shut off my alarm because Lauren and I slept in until 11:30!!! She's a little under the weather and took forever to go to sleep last night. I'm not sure if she woke up a lot overnight because my wonderful husband (and light sleeper) usually gets up with her.

So we played hooky. I took the kids to Costco where we shopped and ate lunch. We had so much fun! I feel minimally bad that I didn't take them to school but I also know this is Ryan's last year of preschool. I can't just not send him to Kindergarten, so I should enjoy this while I can. That's my story and I'm stickin' to it!

Saturday, November 15, 2014

Struggle

I've been doing two different bible studies on thanksgiving and thankfulness with my YouVersion bible app. Doing these studies has really helped me to realize how I have so so much to be thankful for. It's been eye opening and with Thanksgiving approaching, I feel like it's a very relevant topic!

However, being thankful doesn't always make me feel qualified.

Today has been a particularly trying day in regards to my sweet Lauren. She has been very whiny, acting like she can't do things for herself (like getting on the couch- she is totally capable of doing this with no assistance), and just crying for no reason other than she wants attention. It's really hard sometimes because I try to have extra patience with her, but when does it become too much? When do I need to put my foot down and demand appropriate behavior? Would she even "get it"?

I do truly feel so incredibly thankful and blessed that I've been chosen to be this special girl's mama. But sometimes I cant help but wonder- why? I don't always feel capable. I don't always feel like I'm very good at this. Raising Lauren has been a lesson in patience, that's for sure. Sometimes, like today, I wonder why God felt I was equipped for this.

When she throws her lunch on the floor for the millionth day in a row, I wonder what the heck I'm doing wrong. When she throws herself to the ground, again for the millionth day in a row, trying to avoid a ponytail I wonder how else I'm supposed to get her ready for school. As much as most of our lives with Lauren really are puppies and rainbows- raising a child with special needs is hard sometimes. Is it okay to admit this out loud?

 And I'm sure I don't speak for just myself when I say I feel like I'm all alone in this sometimes. A typical almost 3 year old could get a time-out, be told not to do it again, etc. But I know that right now she doesn't really understand. Sure, she knows she's not supposed to throw her lunch on the ground, but would she understand the consequence of a time-out?

And at this exact same time, Ryan is begging me to "go somewhere just you and me". Sometimes I feel so stretched thin between just one kid, and I have two! It's a balancing act where I don't always succeed.

I was attempting to rock her to sleep for her nap today, assuming she must be tired if she's whining and crying so much. And she was! I knew it, she knew but, but toddlers don't easily admit defeat. I was praying for patience and asking God WHY? Why did You feel I could do this?

A saying popped in my head- God doesn't call the equipped, he equips the called.

I 100% believe this to be truth. For other people. But it's so hard to apply this to my own life. Days like today I feel like a failure. But I am still so incredibly thankful that she's mine to raise, even if I don't always feel like I'm doing a very good job.

Saturday, November 8, 2014

"What's Down syndrome?"

Let me start from the beginning.

We're running late to school (shocking, I know) one day last week. As I haul Lauren's wheelchair out of the van, Ryan asks me "When do I get my wheelchair? I want a green one!"

I replied with something along the lines of, "Ryan, honey you probably won't ever have a wheelchair. Lauren has her wheelchair because having Down syndrome makes it a little harder for her ride the bus because she's so small. So her wheelchair allows her to ride the bus with you and still be safe."

"Lauren has Down syndrome? What's that?"

Uhhh..... I wasn't expecting this question yet. Or, like, ever. I guess I just assumed he knew since we talk about it at home and it's not a secret.

I said, "Down syndrome is just part of who Lauren is. Like how you have brown hair and she has blonde hair, or how my favorite color is green and Daddy's is blue. God makes everybody different. Down syndrome might make it harder for Lauren to do some things- that's why it took her a longer time to learn how to walk and why we sometimes have a hard time understanding what she says. But it's not bad, just different! God made her that way."

"Oh, ok!"

Um, what?! I needed to prepare for this! I needed to rehearse, write it out, edit out anything stupid I might say. I didn't plan on having this discussion with my almost five year old while we struggle to pull the wheelchair (that he insists on pushing) out of the van in the freezing cold.

I think I handled it alright. I hope so, at least.

I wanted to convey to him that while he and his little sister are different, I love them just the same. And that just because I might help Lauren a little more sometimes or show her extra patience at times, I love them both with every fiber of my being. I want him to know that I am equally proud of them for what they accomplish and who they are, regardless of how different they might be.

Ryan gave me a huge blessing- he made me a mommy and so he will always hold that special spot in my heart, just for him. And Lauren made me grow up and learn who I am, who I can be and how to truly love unconditionally and so she was always hold that special spot in my heart, just for her.

It was such an emotional conversation for me and it took place in about 30 seconds. I'm sure I messed it up, didn't say everything I meant to tell him and maybe even confused him. But being their mom means I get to show them every day how special each of them are. I get to show them how much I love them and how much I celebrate their difference and take joy in their similarities.

Parenting is a really hard job sometimes but thank GOD I get to have it.

Tuesday, October 28, 2014

Fall fun

We had an unseasonably warm October day so after school the kids and I (along with Grandma Pam, Bubbles, Jesús and baby Timmy) went to a small local fall attraction.

There were pony rides, pumpkins, baby animals and grouchy ducks. Along with Laurens favorite, (fake) cows that she kept mooing at and calling over! Finally I had to tell her they were sleeping. And Ryan saved Lauren from an especially rude duck that tried to bite her. The nerve!

Luckily the kids were somewhat cooperative for pictures.

Saturday, October 4, 2014

Stylin'

We got Lauren's wheelchair!! Its so cute and very stroller like. Her bus driver and para will be thrilled. Ryan's jealous that she'll get to ride the bus ramp.

Check out that cuteness!! She was so pissed. Let's hope she gets happier about it.

Monday, September 15, 2014

Contentment

Time is flying by. I can't even believe it's the middle of September already. The kids are both really enjoying school and making friends. Today Lauren didn't even cry when I dropped her off! They said she stops crying as soon as I'm out of sight but it makes me feel a million times better to leave her in a happy mood.

Since school started September 2nd she's said grandma, spoon, fishy and red (while correctly identifying the color!).

Ryan is flourishing as well. He does great with the classroom routine. He's been such a sweet heart. The parapro on the kids' bus just loves him and has told me twice how sweet he is and how lucky we are. All awesome things to hear!

My twin sister is due any minute with her second. We were over there today and Ryan noticed some baby items and asked what they were for. My sister told him they were for the new baby. Ryan turned and told his cousin, "These are for our brother!". Melt my heart! How on earth did I get so lucky to get these kids?!

Greg and I started a bible study with a few other couples. Our Young Marrieds class at church has kicked off. We're both working/school full time.

Life is going well over here. It's busy. It's wild. But it's so much fun.

I am content.

Thursday, September 11, 2014

Preschool Progress

Lauren's been in preschool for 2 weeks now. Today is the end of her second week.

So far, so good! She really seems to love it. She cries at drop-off, which surprises me. She's never cried when we leave her at church! Her teachers assure me that as soon as I leave she stops crying and waits with her friends on the bus bench.

Two of her teachers have children with special needs! This makes me so happy to know, I feel great knowing that her teachers are also parents who "get it". One of these teachers is Lauren's clear favorite, she's the one Lauren will go to when I drop her off.

This morning they told me that yesterday she was "the most verbal we've seen her yet"!!! She really has been talking more just in the last couple of weeks. Yesterday she said spoon and grandma. This morning she said baby. What a smart girl!!

Today was Ryan's first day riding the bus. Yesterday was the first day, but parents stayed. He just got home and said he loved the bus!! He told me he'll tell me about school "later" because he has to "work" right now. This means he's way too busy playing with all of his trains!

Man, I missed them!! It was a nice morning to myself and I got a lot done, but I missed them more than I thought I would.

Last year vs this year. My, how he's grown!

Tuesday, September 2, 2014

Preschool

Lauren started preschool today!! Isn't that insane?

She's going Monday-Thursday from 9-12. She'll take the school bus home.

Today was mostly a meet and greet, we met her teachers. There are a TON of teachers for her classroom. 2 teachers and 2 para's plus PT, OT and ST teachers. PT/OT/ST will be push-ins throughout the day.

She's the only kiddo with Down syndrome in her class. She's actually the only kid in her class with a visible disability. The classroom is mostly SLI kids (speech language impaired). She's also the youngest (I think) and definitely the smallest. They were passing out the bus harnesses and seemed kind of panicked when they got to Lo. Luckily I jumped in to reassure them that she's getting her wheelchair next week for bus rides! She'll be in a car seat until then. She's much too small for the harness.

She really seemed to enjoy it! It was only an hour long today and parents stayed the whole time. She played with the toys, sat at the chairs and true to form, licked a couple of the tables. The teachers seem really awesome.

I'm sad to actually leave her there tomorrow and trust strangers to get her home. But I'm so, so excited for her at the same time. Preschool was one of my biggest worries when we got her diagnosis. I'm so glad she gets to have this experience!!

Don't worry, I took pictures!

Walking into school! WALKING!!!

Sitting at the table playing.

Playing with a classmate.

Loving preschool.

Bye, mom!
 
My heart is glad.

Sunday, August 17, 2014

Almost back to school. Send help.

Time is flying by. I know they say time flies when you're having fun, but dang. I can't believe it's already nearing the end of August. Lauren starts school in 2 weeks and Ryan in 3 weeks. Greg starts back to work/school tomorrow.

Yep, as of tomorrow I'm back to living a double life of being a full time working mom and a stay at home mom on my days off! The upside to being a nurse is working 3 days a week. The downside is cramming a full work week in 3 days.  It's been almost 2 years since Greg left his job to stay home. I feel so unprepared!! He seems to be a natural parent where I have to work at it a lot more.

Lauren is now walking unassisted. She's not too bad at it, either! Not too shabby for 2 and a half, if I do say so myself. It's hilarious because she wants to walk all the time now, even when it's not the best idea. And she doesn't even remotely follow directions...she walks wherever she feels like walking. Luckily, Ryan is a big helper and loves to chase his baby sister.

I can hardly believe she starts preschool in 2 short weeks. I remember getting our prenatal diagnosis and the first question I asked the genetic counselor was if she'd go to a regular preschool. Hello, overthink much? I'm so excited for her. And I truly don't at all care that it's a special ed preschool. Funny, I really thought it would matter, but it doesn't at all. It helps that Ryan will be going as well.

And Ryan. How is my tiny baby boy starting his last year of preschool? Didn't I just bring him home from the hospital, scared out of my mind and wondering why anyone would trust me with an infant? I still remember with utmost clarity the very moment I found out I was pregnant with him. I took a test to reassure myself I wasn't pregnant and the stick turned pink before I even got done peeing. The feelings of "oh shit" and "how amazing" swirled together like the best mix of terror and excitement and nausea all rolled into one.  I hope this school year lasts forever because next year he'll be in full day kindergarten and I don't think I'll ever be ready for that.

We just got back from an awesome northern Michigan vacation. It was so much fun, very relaxing and spent with 28 of the best family members a girl could ever ask for!

Ryan riding Sandy the Horse during a late night Meijer run

Lauren on a bike ride with Greg
 
Even the ever-popular Aunt Kristen stopped by on vacation! Sometimes friends are just as good as family...so you claim them as family. We love her!
 
Lauren decided to become a full time walker on vacation!

 
Our view from the "house". I don't really know what to call it. It was a huge 11 bedroom, 13 bathroom home on Wildwood Lake. Amazing!!
 
If you're thinking to yourself, "Wow, those kids look pissed to be having their picture taken!" it's because they were. Ain't nobody got time for that.
 
 
So now I have to re-learn how to parent by myself. I'm not exaggerating. Greg does everything around the house and takes awesome care of the kids while I sleep a lot during the day. Now I have to lose sleep AND start cleaning up after myself. I might even have to start doing laundry. :::shudder:::
 


Sunday, July 27, 2014

Summer

Why is it that summertime is so incredibly busy?! We don't have school for Ryan and we take summers off of therapy. But somehow it's even busier!

Lauren is now walking unassisted!!! She only does a few steps at a time and only if she feels like it. But it's so awesome! We could not be more proud. She is really proud too and as a parent, it's so great to watch your child do something they are proud of.

I can't believe it's already the end of July. We're going Up North on vacation in a couple weeks with my whole extended family on my dad's side. It's been so much fun in years past, so I really can't wait! Last year Ryan held a worm and touched a fish- both huge deals for my kiddo. Who knows what this year will hold?

Lauren had her wheelchair seating appointment a while back. The preschool wanted her to have one on the schoolbus since she's not a full time walker. It looks like our insurance isn't going to cover it. Good thing we pay such high premiums. I spoke with someone at her school about it and they said it's really not a big deal and we can put a car seat on a regular bus. Hallelujah!

This might make me a terrible person, but I'm actually looking forward to having both kids at school 4 mornings a week. Those mornings will often be used for sleeping due to my schedule, but just think! On my morning's "off" I can clean the house, read a book, go to the gym, go to Target...all by myself! I really will miss the kids, but dang!

Greg starts work/school mid-August and he's excited! After almost 2 years as a stay at home dad, he's more than ready to go to work. I don't blame him!

Lots of changes happening here!





Saturday, June 21, 2014

Me vs He

I had the day off today, so I woke up around 2pm, took the kids to get ice cream and headed off to church. Greg was bike riding with a friend- perfect day for it!

We had a guest speaker today. Phil Vischer, the creator of Veggie Tales! His story was not one I expected to hear. After putting tons of hard work into his dream, he went bankrupt. Google him. Seriously.

He started off the talk saying that everybody has a "dream". He talked about how putting our personal dream ahead of all else isn't really the way to go. The talk was titled Me vs He, about how our dreams may overshadow what God wants for us. And we may have to give it up to reach the ultimate plan God has for us.

It might have been the most powerful talk I've heard.

He talked about dreams we might have...being a millionaire, owning a huge home, having a healthy child. When he said that I immediately teared up and felt like he was talking directly to me.

When we found out that Lauren had Down syndrome when I was pregnant I was devastated. When we found out she needed open heart surgery I was angry. See, having a healthy daughter wasn't just my dream. I felt it was owed to me. Afterall, I did everything "right". I married my high school sweetheart, started a family after we were married, went back to school to support my family, attended church regularly. I held up my end of the bargain and God didn't. We'd had our kids early so we could retire early, be "empty nesters" early. I was angry. I was hurt. I was so confused on how He could let this happen to me. I truly went through each stage of grief.

My dream of a healthy child truly overshadowed the Lord's plan for our family. I couldn't see it at the time because my heart was clouded in grief, I was drowning.

Greg and I talked about it over dinner today. God's plans for our family are so incredibly amazing, we could've never dreamed up this life. These children. This girl.

Lauren came at a time where we needed her. She was a salve for a rocky marriage. She was the personification of everything we feared and everything we needed.

I am so thankful that we relied on the faith we share that shaped our beliefs on abortion. Lauren would always have been born, there was never another option for us. She is such a huge part of our family, we didn't know it at the time but we were waiting on her to complete us.

My heart is happy.



Monday, June 9, 2014

Things I feared the most

I realized today that some of the very things I feared the most about Lauren have become her greatest treasures in my eyes.

I was so afraid that her slanted eyes would look so different from mine. Truth is that her eyes are a bright vivid blue with gorgeous Brushfield spots. They look nothing like mine but they are absolutely beautiful.

I was terrified that her tongue would stick out. When she smiles her tongue comes just past her teeth, her eyes light up and I would swear she glows.

I was sad that she'd probably walk late. She just started walking this week at almost 2 and a half. We are ecstatic! I can't imagine being happier if she'd done it earlier, what would it even matter?

I wanted to know immediately if she'd go to a special school or if she'd be able to be in school with her brother. She is going to a special education preschool, but her brother will be in a program at the same school. They'll ride the school bus home together.

I was so afraid of being "that family". Different. We are different. And I don't mind at all. Lauren draws people to her, mostly in a good way. She makes people smile left and right and we often have people stop to share stories with us about their own loved ones with Down syndrome. She makes friends wherever we go. There is no blending in with Lauren Hope! And the few times we've felt judged or stared at in a not-so-nice way, we brush it off and feel so lucky that we got her and they didn't.

I was afraid I'd never get to experience what it was like to really have a daughter. Ha. Lauren is all things girl- sugar, spice, everything nice. Add in some snips, snails, puppy dog tails, and a big helping of diva. I don't picture her teenage years being any different. Is it crazy that I want to have arguments about boys, clothes, makeup, friends and homework? Because I do. (Please remind me of this in about 12 years).

I'm finding that Down syndrome isn't scary. It isn't something I spend my life wishing away. Most days I am honestly so thankful that our Lauren is so special. Because she is. I can't explain it. If you've met her, you know. I'm not sure why I have been trusted to be her mom but I'm damn sure I'll try my hardest to be worthy.

I accept her for who she is. Abilities. Disabilities. It's all the same to me. I think most Down syndrome parents will tell you that at one point they were sure that their child would be the smartest, most advanced child with Down syndrome that ever lived. I know I did. But Lauren's not, and that's okay.

She has a couple signs. She says a handful of words. She just started walking (holding onto one hand) and two and a half. She doesn't know her colors. She doesn't know how to count, to say her ABC's.... On paper she's honestly not much to write home about. But her soul radiates love, hope and joy. Her smile can light up a room. Her personality can bring sunshine on the cloudiest of days. Her eyes show a soul filled with all things great. She is Lauren Hope. And I'm so glad she's mine.


Sunday, June 8, 2014

HUGE NEWS!!!

Lauren walked!!!

She can walk now just holding onto one person's hand!!!

Wednesday, May 28, 2014

Long time no update!!

I haven't had time to write anything in months. Life is crazy here!

We had Lauren's IEP for preschool. She'll be getting PT weekly (unless she walks before school starts) and speech 3x a week! Plus they have picture boards in the classroom for her to point at and they'll continue to sign with her. It makes me feel SO much better that she'll have three ways to communicate with her teachers and classmates.

Ryan will be going to the same school! It's our district's "head start" (I think) and it's luckily house at the special ed preschool. I am so so happy that my kids will be at the same school!! I'll drop them off in the morning and they'll take the bus home together. How cute is that?! I was worried about them going to the same high school...kind of getting ahead of myself. And now they're going to the same preschool! It's 4 days a week, they'll get home around noon. What the heck am I supposed to do in the mornings?! Oh yeah, sleep.

Lauren is sooo close to walking. She's cruising on the furniture like a champ, she'll even go from one piece of furniture to another without sitting down. She walks with her push toy like she invented the idea. And she now will walk (when she feels like it) holding both of our hands! That stereotype about people with Down syndrome being stubborn? Yeah, she proves it true. But some of that might come from Grandma Pam.

I do have some sad news. Our sweet Maizy pup has passed away. It was horrible, she was only 2 years old. She was so sick and I am so glad she's not suffering, but I miss her so much every day.

By a twist of fate, divine intervention or dumb luck, we ended up with a new dog who happens to be one of Maizy's puppies! When we met Maizy she was pregnant....with Sky.

Sky is 11 months old and FULL of energy, excitement and craziness. She's getting spayed in 2 weeks and my sister suggested that it might benefit us all if they did a lobotomy at the same time. LOL!

Life is nuts here, I'm looking forward to the schedule-free laziness of summer. It will be nice to have a break before we're throw into a busy schedule of "real school" and the schedules that go along with it! I really miss blogging, maybe I'll even have some time to get back to writing.

Me and Lauren. I love that she still loves the Ergo!

Ryan and Aunt Kristen!

The Three Muskateers
 
Meet Sky! This will probably be the only picture you'll ever see of her sitting still.
 
See? They do like each other. I told them to do this.
 
Lauren's Easter dress!

Ryan/Batman at the Easter egg hunt at our church!
 
Ryan at our family Easter celebration! Isn't he just so handsome?!
 
And last, but not least...The cutest couple you've ever met. Us!

Sunday, March 30, 2014

The last 2 months: photo highlights

This post is mostly a photo dump. I can't believe I haven't blogged in 2 months!!

 Everyone's favorite dog, Maizy!

 Lauren was not impressed with her new shoes. I think they're growing on her.

Ryan finally getting to play outside!
 
Everyone's favorite dog, Clifford!

And to think I was afraid she wouldn't be able to open her own birthday presents!

Proof that they actually do like each other (sometimes).

2nd birthday cake!
 
The best looking couple around.

Doesn't everyone brush their teeth this close to the dog?

I'm baaaaack!

I haven't updated in forever. Largely because my Blogger app crapped out on me and I can no longer blog from my iPhone. Oh the horror!

Girlfriend is two now! She's the cutest little toddler around. She's cruising on the furniture, she can walk sideways and forward (if she feels like it) while holding onto both of my hands. Some times she gets really excited and has to sit down to clap for herself after about 3 seconds. She's also started singing (total nonsense, but with a tune) whenever we sing to her. She can now sign more, eat, drink, apple, spider, dog and she waves hi and bye. She also says a handful of words and will occasionally bust out with a couple of words strung together. She told me happy birthday last week, no joke!

She starts preschool in the fall! (What?!) I'm excited because I think she'll love it but panicked because it's 4 (half) days a week. I'm still kind of in denial.

We celebrated her 2nd heart-day on Saturday! She had her heart surgery 2 years ago, it's so hard to believe. At the time it felt like she'd never get better. And today you'd never ever know she was so sick. We are so incredibly blessed!

Ryan is a crazy 4 year old and SO much fun. Today he finally got to take a coat-free walk outside without the risk of frostbite. He's loving school and asks to go every day. Lately he and Lauren have been so sweet with each other, it's so amazing to watch. And obviously Jesus, my adorable baby nephew most often known as "Baby Cousin" makes almost daily appearances at our house. The best part is that by late September, the cousin brood will grow by two more kids. Both of my sisters are pregnant!!!





It feels great to be back to the blogging world!

Wednesday, January 29, 2014

It's almost birthday time!

I've started planning Lauren's 2nd birthday party!!

What?! 

I can't even believe she's almost 2! We're having a little party at my amazing in-laws' house. I can't wait to pick out decorations. And I'm pretty sure a girl needs a new dress for her 2nd birthday :)


She's seeing physical medicine and rehab tomorrow. It's known as our area's Down syndrome clinic and the doctor has a son with Down syndrome! I'm excited to hear their recommendations. What we actually decide to do is largely based on what our medical insurance will cover. Out of pocket costs for therapy is craaaazy when insurance doesn't cover any of it. Lauren's Medicaid coverage ends on Friday. 

I'll update after our visit :)

Monday, January 20, 2014

They're always so sweet....

Could someone PLEASE pass Lauren the memo that kids with Down syndrome are always happy and sweet? Snuggly and adorable?

Okay, she's almost always adorable. But now that she's almost 2 she is crazy! Does it magically occur to kids right around their second birthday that they can wreak havoc in many ways?

 
Those are chips. It's like a chalk outline from a crime scene! Look how proud she looks? She's not even kind of sorry. In fact, when I saw her I immediately exclaimed, "Lauren!!!" and do you know what she did? She clapped and asked for a kiss.
 
She's like a tiny, chubby, baby monster.
 
She also managed to lock herself in the bathroom this morning by getting in (with a suspected accomplice of about three and half feet tall). She got in, opened the drawer to the vanity and blocked the door from being opened. I tried to shut the door through the tiny opening with a straw. She took the straw. FINALLY after much coaxing she shut the drawer and I grabbed my make-up and deodorant covered baby out of there.
 
And now Ryan is kindly sharing a snack of sparkly hot-air balloon stickers with his baby sister. Who are these tiny creatures and how the heck did they get in my house?!

Thursday, January 16, 2014

Almost 2

I haven't blogged in forever. We're busy! Were about to get busier... Come this fall I will be in school (I'm getting my bachelors degree in nursing. Not necessary but I want it), my husband is going back to school full time and BOTH kids will be in preschool.

Yes, we are crazy.

Lauren is likely starting preschool in the fall!! She'll be 31 months. Our district says that kids in special Ed can start preschool at 29 months. So we're getting a year less of early intervention than we thought. I'm terrified.

I am pretty sure Lauren will love school. She's a social butterfly! But she's my baby, I don't feel ready and this is a big jump outside of my comfort zone. Good thing we have all the way to September.

Lauren also recently had her 2 year checkup. Yep, she's almost 2!! She's doing well. She's healthy ( she had pneumonia but recovered well with antibiotics and didn't need to be hospitalized) and loved the doctors office.

Ryan wa sick too so we took him to his pediatrician yesterday for a re-check. He's A-okay and barely cried! He played with baby sister really well and even found a group of kids to talk to. He introduced Lauren to them (without any prompting) because she was waving like crazy and saying hi! He's such a good boy!

She's obviously pretty delayed. The one thing she scored on age-level were her social skills. If you've ever met Lauren I'm sure you're not surprised! 

She's pretty delayed in motor skills, even for a kiddo with Down syndrome. We're having her see the physical medicine team to find out if there's a "why" other than her already diagnosed significant low muscle tone. I'm sure they'll make some physical therapy recommendations. Unfortunately, Lauren hates physical therapy and our insurance doesn't cover it. I'm not paying a bazillion dollars for something she can't/won't participate in. Maybe I'll sign her up for a toddler gymnastics class or something, I don't know. We're going to have to be creative! Her Medicaid coverage ends in a couple of months and we can't afford to pay out of pocket for therapy.

She is crawling like a maniac as cruising on the furniture like a champ! She even took a few steps with a push toy a couple of times. I think that some kids will do things as they're ready an as their muscles mature, regardless of how many therapy interventions we throw at them. Or maybe I'm just telling myself that to make me feel better. 

I'm eager to see the physical medicine peeps to get their take on it!