Welcome to my blog!

A blog about our busy family with two amazing kids, one of whom happens to have Down syndrome!

Thursday, December 24, 2015

Big news!!

I have to share some big news...

RYAN ATE A CHEESEBURGER!!!!!

Those of you who don't know my family may not get it. But anyone who has a kid with major food issues knows this is MAJOR!!! He has never eaten meat, not even as a baby. He used to eat chicken nuggets but now won't anymore. His only protein source is peanut butter.

I am so so proud of him!! 6 is going to be a big year for him!

Saturday, December 19, 2015

He's SIX!!!

Ryan celebrated his 6th birthday yesterday! I can't believe my tiny baby boy is growing up so fast! I'm sad that Greg is not in any of these pictures, he was there!


God's bigger picture

My poor blog has been neglected for months! Time flies when you're having fun. Working days is a whole new ballgame for me and almost five months letter I'm still settling in to a routine.

I thought I'd take the time the explain, from the beginning, how I came to work at my new job.

My husband's grandparents were wealthy. They donated a lot of money to a lot of places. When we found out at 18 weeks pregnant that Lauren would be born with Down syndrome, they told us they had donated a large sum of money to a clinic for kids with special needs (I believe they donated well before we knew Lauren would be extra special). They were invited to a donor's tour kind of thing and they invited us to go with them to see what it was all about.

We went and it was awesome. We met the doctor who ran the clinic and the first thing she said was "Congratulations!" with a big smile on her face. That was the first time since finding out our baby had Down syndrome that someone who knew congratulated us. We got to listen to a presentation about the purpose for the center, the doctor talked about her passion for kids with special needs and her vision for what the clinic would accomplish. My husband and I both had tears in our eyes from listening to to people talk about a place of true acceptance. We couldn't even picture that point in our journey yet.

I was just barely a nurse at this point, having passed my state licensing exam but not even thinking about working yet. I was disappointed because so many of my friends from nursing school were working and I couldn't see past our current crisis. I remember thinking that my life dream would be to work there. But as a brand new nurse with absolutely zero work experience, I kind of brushed it aside in my mind.

Fast forward to four years later, I was working in the hospital on midnight shift and browsing internal job postings. I saw a position open for a RN at my dream job! I applied, thinking it wouldn't hurt but I would likely not hear anything since I only had adult inpatient experience.

You know the rest. I interviewed and got the job. I feel like God had this planned the entire time. In my grief of getting Lauren's diagnosis all I could see was the present and that my life would be so different than I had ever imagined. I probably wouldn't even know such an awesome place existed without being Lauren's mom. This story is such a testimony for me to always trust that God has a bigger plan, but only reveals small parts to us at a time. I LOVE my job. I have the honor of working with amazing people who have dedicated their lives to making a difference in the lives of families who are raising differently-abled kids. So many of us have an awesome story to tell about how we became part of the team. My very first day on the job a beautiful boy with Down syndrome gave me a hug. I felt like that was one of the moments in my life where I felt with 100% conviction that I was exactly where I was supposed to be and doing exactly what I was supposed to be doing. I feel like I am such a small piece of the puzzle but I am so incredibly honored to have this job.

Lauren is now almost 4 years old! Her birthday is in less than two months. She is my biggest testimony that unanswered prayers are sometimes the  biggest blessing.