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A blog about our busy family with two amazing kids, one of whom happens to have Down syndrome!

Saturday, July 2, 2016

4 years of Lauren

I have fallen off the blogging truck. Its been months since I've written anything which us due to a combination of writers block and smooth sailing.

Lauren is 4 years and 4 months old. I could never picture her being this age! She is so much fun. And so incredibly SASSY. She is 4 going on 14! Let me just enlighten you on some of the funny things she is doing.

-If she doesn't want to do something she's asked to do she says "No ma'am!"
-She has a bike seat attached to my bike and she loves bike rides. She will just go get her helmet and put it on of she wants to go for a bike ride, then come find me and say "Mom! Want bike ride!"
-She loves to brush her teeth
-She loves to throw everything in the toilet. Recently this resulted in major plumming issues that resulted in 2/3 of our toilets having to be completely disconnected and removed.
-We are on our 4th pair of glasses since August. I'm sure you can guess why.
-She loves to sing. And pray. And talk nonstop every single waking moment of ever single day. Its so awesome and we know how blessed we are that she's so verbal!
-She is potty trained!!! This was a rough go at first. She was afraid of pooping in the toilet which resulted in even worse constipation than usual (sorry for the TMI but I know my Ds families feel out pain). Now that she's not scared and taking fiber gummies daily, she is having daily bow movements in the potty! PTL!

Really, life has been mostly good here. Lauren has been running/eloping which is absoluty terrifying. She can slip away in a second and while she seems momentarily afraid when we catch/find her, she truly does not seem to understand danger. She now has a bracelet she wears 24/7 that says "I have special needs" and "Please call if I am lost" along with our phone numbers. We're looking into GPS tracker bracelet systems. We've talked about a service dog but the cost is prohibitive. We double and triple lock our doors. Our outside gate gets locked. Ryan is always on the lookout. I feel bad because I know this causes Ryan a lot if anxiety too and he's only 6 years old. We were watching her at gymnastics this week and he briefly couldn't see her. He lanicmed and said "Oh no, I bet she ran. We need to find her." I explained that the gym was owed in and that she could not get out. This worry has become a way of life for us that is very stressful! She's gotten lost at a museum (briefly, with 2 adults watching her), escaped from our house (I found her 2 blocks over), runs from us at church, almost jumped in a swimming pool, etc. Its so scary. And Ryan kind of gets neglected while we're out because I know he won't go anywhere. We've started bringing her adaptive stroller pretty much everywhere to contain her. She would way rather walk, so this is not a fun option but it is a safe option. We bought a little backpack leash that we haven't used yet.

Mostly, 4 years into this journey I am still surprised at how fun it is. She has such a joyful spirit (which makes discipline so so hard for us!). I'd swear she is made if pure sunshine.

Last night I got home at 9:15 and she was still awake. She was so hyper and had the giggles. She is usually very lively but this was comparable only to a leprechaun on cocaine. My arms were weak with laughter while trying to escort her upstairs for bed for the millionth time. Then we were rocking in her rocking chair and she kept kissing me and then cracking up again! I was trying (and failing) to keep a straight face. All I could think of is that I know I never deserved any of this. And I am so so blessed.

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